Hi. I am new here. I don't know if this is the right place to be posting, but I don't really know where to start. My husband and I have been married 2 1/2 years. We are not pregnant. My husband has Marfan's syndrome. That is a connective tissue disorder that is a 50/50 chance of passing it on. Right now we are at a crossroads on what to do. We have looked into genetic testing before pregnancy, amnio and cvs after pregnancy, or adoption. I was wondering if anyone has ever experienced having to go through these types of decisions or maybe someone knows a good website or support group. We are struggling with all the emotions that come with having to make these decisions. Any help will be appreciated! Thanks!
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new here and struggling with emotions
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 zoogster |
new here and struggling with emotions |
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Posts: 1 (09/21/05 20:33:59) |
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kyriesmomma |
Re: new here and struggling with emotions | ||
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Posts: 430 (09/22/05 23:41:28) |
Hi and Welcome- my first baby was born with developmental delays. She has no diagnosis, is very healthy- no heart conditions or medical conditions, and she progresses every day. We were told that with our next pregnancy, we had a 25% chance that that baby would have problems too. I am adopted, and my husband's mother is adopted, so we have no genetic history at all. We talked to a genetic counselor, and decided against amnio due to the risk for spontaneous abortion being as high as the risk for carrying a baby with genetic problems. It wasn't a tough decision for us because we knew we would have the baby no matter what. With my 3rd on the way, we just decided not to even worry about it. My second born is fine, and has actually beaten most of his milestones. I think that for me, if I found out my baby was going to have a syndrome, I would think aobut what his/her quality of life will be like with the syndrome. How does you rhusband deal with it? Is it painful, cause a shorter life span, brain abnormalities, medical problems, etc? If the baby's quality of life won't be seriously affected by the syndrome, I would probably go ahead and try to have one. But, I don't really have a clue about what you are going through. Best of luck to you, and know that my prayers are with you for a happy and healthy family however you can get it. Like I said, I was adopted, and I couldn't have chosen a better family to grow up in.
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